* * PLEASE NOTE: The following list is only a small selection of internet resources available to persons with brain injury, their families, caregivers, and professionals.
SEMTBIS does not endorse any of these websites, nor make any guarantees regarding the information or services included on these sites.
* * Using your right mouse button "click" on the name of the website you would like to visit. You will automatically be directed to that site.
Brain Injury Association of America
Provides TBI education and prevention, support groups, advocacy, community service information, and local resources. Website also contains definitions to medical terminology, details of the rehabilitation process, and information on state programs. Information provided in Spanish, as well as English.
Brain Injury Association of Michigan (BIAMI)
Michigan's website provides information on local chapter meetings throughout the state, as well as TBI prevention, education, advocacy and research activities.
Center for Outcome Measurement in Brain Injury
The Center on Outcome Measurement in Brain Injury (COMBI), is an online resource for those needing detailed information and support in regards to outcome measures for brain injuries. The measures included in the COMBI are commonly used in the field of brain injury. The centers submitting the information shared here are all Traumatic Brain Injury Model System centers.
Charles A. Dana Foundation
At this site you will find information about the programs, activities, and publications of the Dana Foundation and the Dana Alliance, as well the latest news about the brain.
Coma Recovery Association
Provides information and referrals regarding advocacy, networking, treatment, rehabilitation, referrals and support to those affected by coma and brain injury. Website also includes reports and listing of available materials.
Family Caregiver Alliance (FCA)
Assists families of persons with chronic or progressive brain disorders. Distributes information on caregiving and care of people with cognitive impairments. Website contains fact sheets, articles, and on-line support via e-mail.
The FCA also publishes a free newsletter written in Spanish for family caregivers. The newsletter (available in Spanish and English) is available on the FCA website or can be sent to families, upon request. The newsletter is issued three times per year and articles include caregiving concerns, information on workshops and support groups and advice on how to care for a loved one affected by Alzheimer's disease, stroke, brain injury, Parkinson's and other conditions.
Head Injury Hotline
Provides information on living with brain injury, including consultations and referrals to health care, legal professionals, and support groups. The Head Injury Hotline, a TBI information clearinghouse, contains hotline information and an e-mail address for submittal of questions.
Michigan Department of Community Health (MDCH)
This site offers a wide range of information that may be of interest to residents of the State of Michigan. Included are descriptions of various programs and services including MI Child, Services for the Aging, Medicaid, Michigan Rehabilitation Services, Michigan Association of Centers for Independent Living, and the Crime Victim Services Commission.
Of special interest is the "Michigan Resource Guide for Persons with Traumatic Brain Injury and Their Families". This purpose of this guide is to "link" people with state and local services. The guide presents information on financial aid, housing, medical care insurance or aid, housing, education, vocational rehabilitation, legal aid and advocacy, mental health and transportation services. This FREE guide can be accessed and downloaded from the MDCH website (search for "Traumatic Brain Injury") or by contacting the Brain Injury Association of Michigan at (800) 772-4323.
Two brochures are also available:
"Resources for Persons with Brain Injury and their Families" offers a list of some common characteristics of brain injury and information on available support services in Michigan. Also included are suggestions for agencies or organizations to contact to obtain more information on needed services as well as current contact information for these organizations.
"Important Information about Working with Persons with Brain Injury and their Families" offers some tips to help service providers to identify and work with persons with TBI. It includes a list of some common characteristics or brain injury and suggestions for helping individuals with brain injuries find and access the services they need.
The Michigan Resource Guide (MRG) and brochures are available in English, Spanish and Arabic.
Copies of the MRG and pamphlets may be obtained by contacting the Brain Injury Association of Michigan at (800) 772-4323.
The Brain Injury Information Network
This site offers information and a support network. Approximately 30 support mailing lists and on-line chat groups are offered and hosted. Membership is free.
The Brain Information Network
The Brain Injury Information Page provides information about brain injury, concussion, coma and head injury, for TBI survivors, spouses and caregivers.
The National Resource Center for Traumatic Brain Injury
Provides practical and relevant information, including videotapes, educational materials, intervention and assessment tools for professionals, people with TBI, and family members. Website contains lists of available materials, a question and answer column, and relevant links.
The Perspectives Network
The Perspectives Network, Inc.'s primary focus is positive communication between persons with brain injury, family members/caregivers/friends of persons with brain injury, those many professionals who treat persons with brain injury and community members in order to create positive changes and enhance public awareness and knowledge of acquired/traumatic brain injury.
TBI Chat Room
Member stories, links, general TBI information, and caregiver internet resources. Approximately 12 message boards and various chatrooms are available for participation.
TBI Technical Assistance Center (TBITAC)
TBITAC assists States in the planning and development of effective programs that improve access to health and other services for individuals with TBI and their families.
Traumatic Brain Injury Model Systems (TBIMS)
Funded by the National Institute of Disability Rehabilitation Research (NIDRR), these projects research the spectrum of care from point of injury, through rehabilitation, to integration back into the community. The TBIMS centers produce a wealth of information and resources.
Assistive Technology
A national public Internet site on assistive technology and disability related resources; the site features a comprehensive database of assistive technology products and electronic links to a wide variety of private and public disability services and resources; sponsored by the National Institute on Disability and Rehabilitation Research.
Disability Information
This is a one-stop governmental interagency website for people with disabilities, their families, employers, service providers, and other community members. DisabilityInfo.gov is a comprehensive online resource specifically designed to provide people with disabilities with the information they need to know quickly. The site provides access to disability-related information and programs available across the government on numerous subjects, including civil rights, education, employment, housing, health, income support, technology, transportation, and community life.
Job Accommodation Network (JAN)
JAN is a free consulting service that provides information about job accommodations, the Americans with Disabilities Act (ADA), and the employability of people with disabilities.
National Center for the Dissemination of Disability Research (NCDDR)
The NCDDR performs research, technical assistance and demonstration activities focusing on the dissemination and utilization of disability research funded by the National Institute on Disability and Rehabilitation Research (NIDRR).
The National Rehabilitation Information Center (NARIC)
NARIC offers innovative information products online. These resources include: five searchable databases of research, organizations, documents, and Internet pages; an interactive calendar of disability and rehabilitation events around the world; monthly features; and a current awareness service highlighting the most recent additions to their collection.
Yahoo! Directory Disabilities
This site provides resource lists of disability-related websites by category, alphabetically, and by popularity.
Benefits Check Up
"Benefits Check Up" features a database of roughly 1100 federal and state programs for older adults (ages 55 and older) and people with disabilities. The site is a nonprofit initiative led by The National Council on the Aging.
Care Guide
"Everything families need to understand, plan and manage care for their elderly loved one."
Case Management Resource Guide
Search for rehabilitation facilities and numerous other healthcare providers. Database includes over 120,000 specialty health care services, facilities, businesses and organizations. Free access.
Centers for Disease Control and Prevention (CDC)
The CDC is recognized as the lead federal agency for protecting the health and safety of people - at home and abroad, providing credible information to enhance health decisions, and promoting health through strong partnerships. CDC serves as the national focus for developing and applying disease prevention and control, environmental health, and health promotion and education activities designed to improve the health of the people of the United States.
Disability/Medical Related Discussion Lists
Over 20 e-mail discussion groups are listed on this site. Simply select the group(s) that interest you and sign-up to participate in the e-mail discussion groups. Postings are sent directly to your e-mail address.
Epilepsy Foundation
The Epilepsy Foundation is a national, charitable organization. It is the only organization wholly dedicated to the welfare of people with epilepsy. Their mission is simple: to work for children and adults affected by seizures through research, education, advocacy and service.
First Gov
This is the official gateway to all government information with links to federal, local, tribal, and foreign nations around the world. Do business on-line: apply for social security benefits, check on recalls and consumer information, renew car tags, file taxes, etc.
National Easter Seal Society
Provides information on multiple services including physical, occupational, and speech therapy, adult day care, childcare, camping, recreation, and vocational rehabilitation. Call for information on offices in your area. Website includes program information listed by city and state.
Neurotrauma Registry
Web-based resource list for individuals who have neurotrauma injuries. Features a brain map, spinal cord map, neuroglossary, U.S. and international resources, and neurolaw information.
PoinTIS-Point of Care Team-Based Information System
PoinTIS is a website that provides comprehensive information on spinal cord injury rehabilitation and traumatic brain injury rehabilitation for health care providers, patients and patient's families. PoinTIS is readily accessible at the point-of-care and along the entire continuum of patient care.
Social Security Online
Provides information on eligibility and benefits including Supplemental Security Insurance (SSI) and Social Security Disability Insurance (SSD). Forms and publications are available in 16 languages.
Brain Injury Association of Michigan (BIAMI)
Michigan's website provides information on local chapter meetings throughout the state, as well as TBI prevention, education, advocacy and research activities.
Michigan Department of Community Health (MDCH)
This site offers a wide range of information that may be of interest to residents of the State of Michigan. Included are descriptions of various programs and services including MI Child, Services for the Aging, Medicaid, Michigan Rehabilitation Services, Michigan Association of Centers for Independent Living, and the Crime Victim Services Commission.
Of special interest is the "Michigan Resource Guide for Persons with Traumatic Brain Injury and Their Families". This purpose of this guide is to "link" people with state and local services. The guide presents information on financial aid, housing, medical care insurance or aid, housing, education, vocational rehabilitation, legal aid and advocacy, mental health and transportation services. This FREE guide can be accessed and downloaded from the MDCH website (search for "Traumatic Brain Injury") or by contacting the Brain Injury Association of Michigan at (800)772-4323.
Two brochures are also available:
"Resources for Persons with Brain Injury and their Families" offers a list of some common characteristics of brain injury and information on available support services in Michigan. Also included are suggestions for agencies or organizations to contact to obtain more information on needed services as well as current contact information for these organizations.
"Important Information about Working with Persons with Brain Injury and their Families" offers some tips to help service providers to identify and work with persons with TBI. It includes a list of some common characteristics or brain injury and suggestions for helping individuals with brain injuries find and access the services they need.
The Michigan Resource Guide (MRG) and brochures are available in English, Spanish and Arabic.
Copies of the MRG and pamphlets may be obtained by contacting the Brain Injury Association of Michigan at (800) 772-4323.
Michigan Legal Services
This website is a guide to free & low-cost civil legal services. All of the free legal aid programs, other community resources, and basic information about your legal rights can be found here.
Michigan Protection & Advocacy Service (MPAS)
MPAS promotes, expands and protects the human and legal rights of people by providing them with information and advocacy. People with disabilities have to deal with a wide variety of issues. We try to answer any questions you may have relating to disability. We have experience in the following areas: discrimination in education, employment, housing, and public places; abuse and neglect; Social Security benefits; Medicaid, Medicare and other insurance; housing; Vocational Rehabilitation; HIV/AIDS issues; and many other disability-related topics.
BRAIN INJURY ASSOCIATION OF MICHIGAN (BIAMI)
BIAMI is a non-profit organization that brings together persons with brain injury, their family and friends, concerned professionals and their communities. The goal of the BIAMI is to enhance lives after brain injury through support and education, and to increase public awareness. You do not need to be a BIA member to attend the support group meetings.
Community Activities
Local support group meetings are held at the following locations:
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Detroit-Wayne County Chapter
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| Contact:
|
Roderick Arnold (313) 567-3779
|
| Date: |
3rd Wednesday of each month |
| Time: |
6:00 p.m. |
| Place:
|
Rehabilitation Institute of Michigan, Room #813 |
|
Downriver Chapter
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| Contact:
|
Sheri Fricke (734) 281-3960 or (734) 552-6077
|
| Date: |
3rd Thursday of each month |
| Time: |
7:00 pm |
| Place:
|
Wyandotte Hospital, Meeting Room A
2333 Biddle, Wyandotte
|
|
Macomb Chapter
|
| Contact:
|
Marty Zobrovitz (586) 774-0135
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| Date: |
Last Wednesday of each month
(3rd Wednesday in November and December) |
| Time: |
7:00 p.m. |
| Place:
|
Education Service Center
44001 Garfield Road, Mt Clemens
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|
Wayne-Oakland Chapter
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| Contact:
|
Sol Baltimore (248) 569-3633
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| Date: |
2nd Thursday of each month |
| Time: |
7:30 p.m. |
| Place:
|
Botsford Administration Bldg
20850 Grand River, Farmington Hills
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ALCOHOLICS ANONYMOUS MEETINGS (AA)
"AA fellowship of men and women who share their experience, strength and hope with each other that they may solve their common problem and help others to recover from alcoholism. The only requirement for membership is a desire to stop drinking." Meetings are held:
| Date:
|
Every Monday and Wednesday
|
| Time:
|
6:00 p.m.
|
| Location:
|
Rehabilitation Institute of Michigan, Room 825
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For more information, call (313) 831-5550 or visit the AA website.
All links verified 10/19/07
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